This will probably become its own website at some point.
The US and world have a problem: chronically ill people who are misdiagnosed by their doctors (similar to people affected by mold and other chronic diseases). Luckily for many people bit by ticks containing the various bacteria which cause Lyme disease and “co-infections” (other diseases) — they are diagnosed properly the first time and given anti-biotics by informed doctors — and the antibiotics work. The rest of you aren’t as lucky!
I’m planning to set up the world’s first Lyme-specific “adopt a lyme patient” portal. Until that happens, this is the online presence!
Our first two “adopted” patients are CQ (California) & JJ (New Hampshire).
Cynthia Q. got chronic Lyme disease after being bitten by a tick in college. She was misdiagnosed by doctors for years – a sad tale familiar to other long-term Lyme disease sufferers. Now age 42, Cynthia has been unable to work due to seizures, lack of sleep, blackouts, fatigue — for the past 3 years. On top of this burden over the past year, Cynthia contracted a mold infection by unknowingly staying in a mold-infected house in Santa Cruz – while trying to escape the more polluted air and EMF waves of the densely urban San Francisco Bay Area. For the past year she has felt like she is dying. Since I caught a bad bout of hyperthyroidism in Dec 2019/Jan 2020 (unsure if triggered by “covid”, testing was unavailable back then) I have even better empathy for people dealing with chronic illnesses. In the depths of feeling unwell, I wasn’t sure if I was going to make it. Cynthia and people like her deal with this every week for months!
She’s getting by only through the kindness and generosity of her old grad school classmate who is letting her rent a room free. Cynthia’s family isn’t local or able to assist her. Unemployment and disability ran out and didn’t quite cover her medical bills. Cynthia’s been literally unable to work. Many days, she’s unable to get out of bed. Although we’ve known Cynthia since 2019, we didn’t know until this year that she didn’t sleep more than 3-4 hours per night. She wakes up every 1/2 to full hour due to pain. For me, this verifies the statement made by a former persistent Lyme disease patient on our Team Mission page: “Chronic Lyme is a living death.”
So far Shark Fin has donated activated charcoal (to bind mold toxins) and a CellCore Mold Treatment Kit of supplements and tinctures to help Cynthia regain some physical strength and mental clarity. (The Microbe Formulas kit is $9 cheaper and even cheaper by subscription: $333/mo instead of 379.) We also researched the herbal protocols which treat Lyme with herbal medicines (since the CDC’s recommended course of anti-biotics doesn’t work for people with chronic Lyme) alongside the best generic anti-mold treatment program we could find. To our mutual amazement, Cynthia’s been able to sleep 6-7 hours per night after starting this treatment. Woohoo!
With new strength from these additional supplements, Cynthia will be able to tackle the task of getting herself back to naturopath or functional medical doctor’s offices. To me the obvious choice is Sanoviv in Baja California. Another option is NeoMed inCyprus — the world’s most affordable and thorough Lyme disease treatment clinic. This would be a significant undertaking for someone healthy. However, Cynthia struggles with brain fog caused by Lyme bacteria crossing her blood brain barrier and attacking her brain. Late stage Lyme disease seems very much an auto-immune disease as incapacitating as any late stage cancer, or perhaps AIDS – without the public awareness, solutions, or research funding.
Cynthia’s roommate is kind, but owns a cat. Normally cats are fine, except for pregnant women due to the prions that jump from cat to human brain… and this could be bad for anyone suffering auto-immune disfunction and chronic diseases.
Cynthia’s state of long-term chronic illness is caused not just by Lyme disease (caused by bacteria borrelia burgdorferi, named after US biowarfare researcher William Burgdorferi) but also:
- babesia (Medical Journal) – another common “co-infection” (additional bacterial infection- these ticks pack a party pack of diseases)
- symptoms (per CDC): nonspecific flu-like symptoms, such as fever, chills, sweats, headache, body aches, loss of appetite, nausea, or fatigue. Because Babesia parasites infect and destroy red blood cells, babesiosis can cause a special type of anemia called hemolytic anemia. This type of anemia can lead to jaundice (yellowing of the skin) and dark urine.
- Babesiosis can be a severe, life-threatening disease
- Complications of babesiosis can include:
- A low and unstable blood pressure; Severe hemolytic anemia (hemolysis); A very low platelet count (thrombocytopenia); Disseminated intravascular coagulation (also known as “DIC” or consumptive coagulopathy), which can lead to blood clots and bleeding; Malfunction of vital organs (such as the kidneys, lungs, and liver); or Death.
- Complications of babesiosis can include:
- bartonella – common among dogs/cats also
- symptoms: fever, fatigue, headache, poor appetite, and an unusual streaked rash that resembles “stretch marks” from pregnancy. Swollen glands are typical, especially around the head, neck and arms. Patients with bartonelliosis report more neurological symptoms and are more likely to have visited a neurologist than members of the general population. Some common symptoms include blurred vision, numbness in the extremities, memory loss, balance problems, headaches, ataxia (unsteady gait), and tremors. Bartonellosis also sometimes triggers psychiatric manifestations.
The cost of one month’s treatment at NeoMed ranges from 10,000-15,000 Euros. At the time of writing (March 2021) due to “covid” quarantines and lockdowns, Cyprus isn’t letting in American patients. However, perhaps with a medical travel exemption, it may be possible. We haven’t confirmed yet.
Jessica J. got chronic Lyme disease from spending time out in nature (which is normally a great thing, which we also love doing), got bitten at least once, and has been fighting Lyme disease for about 10 years now, similar to Cynthia. All photos above are from Jessica’s instagram.
In her own words…
💚Jessica Jensen (me 🙂 ) 💚 💚29 Years Old 💚Grew up in North Andover, MA and live in Hillsboro, NH. 💚Took 5 years to get diagnosed with Lyme. 💚I have seen 20+ doctors. 💚I was misdiagnosed with Fibromyalgia, Rheumatoid Arthritis, Lupus, Depression and Anxiety. 💚My major symptoms include… migraines, dizziness, brain fog, head pressure, head on fire, hot flashes, allergic reactions to the world (throat swelling/sick to stomach), all over body pain, difficulty breathing, tachycardia, feet/legs turn purple & are numb or burning, nausea, bloating, reflux, fatigue, and poor immune system. (I am probably missing some 😂🤦🏻♀️)
💚I am diagnosed with Lyme Disease, Irritable Bowel Syndrome, Interstitial Cystitis, Pelvic Floor Dysfunction, Raynauds, Chronic Sinusitis, Laryngopharyngeal Reflux, Neurocardiogenic Syncope, Postural Orthostatic Tachycardia, Chronic Migraines, Livedo Reticularis, Chronic Fatigue Syndrome, Chronic Epstein-Barr Virus, Bartonella, Babesia , Neuropathy, Chronic Inflammatory Response Syndrome/Mold Toxicity and Mast Cell Activation Syndrome.
💚Once I got diagnosed I lost health insurance so I focused on fixing my tummy troubles with a superfood shake & healthy eating plan, exercising and boosting my immune system. Recently mold toxicity & mast cell activation disorder were added to the mix& my body is a mess again. I am working with a naturopath currently to customize a healing path!
💚Each year I spend at least $10,000-$15,000 on my health and it will only increase because most Lyme/Coinfections/Mold treatments & testing are out of pocket.
💚I wish others knew that Lyme Disease if not caught early can be a life long expensive battle. Many people live with such horrible symptoms they would rather be dead. Having Chronic Lyme also typically leads to medical PTSD.
💚Phrases I would rather not hear on my healing journey include… “You are not better yet?” or “But you look healthy.” or “You are just lazy.” or “You are just looking for attention.” Or “I think you can do that.” People with Lyme are fighting for their lives everyday and do not need any added negativity. 👇🏻
Every day, Jessica does her best to fight against two enemies: Mold infection and Lyme infections. Jessica also is affected by POTS, EBV, and some other illnesses which like to tag along with the free ride that Lyme disease affords the bacterial world. She treats herself with an infrared sauna to get rid of toxins, CBD tincture for pain, and various herbal supplements.
However, Jessica needs to leave her mold infested housing situation in New Hampshire, a snowy, damp state in the winter. She also has two dogs who may or may not harbor bartonella, babesia, and other Lyme diseases.
Jessica would also be well served by treatment at NeoMed or any other chronic Lyme/cancer/CFS treatment clinics in Mexico (cheaper than the US) or the US (quite pricey).
So far, Shark Fin has donated a Mold Test Kit to Jessica to confirm which strains of mold fungi her body is fighting, so she can fine tune which herbal treatments and toxin binders she can use. One of the best general purpose toxin binders is Activated Charcoal.
We know that Avril Lavigne and Justin Bieber among other famous people have overcome Lyme diseases by having the best medical care possible – no expense spared. I am curious to know how these celebrities have overcome Lyme disease — at what cost in time and money. It takes months/years to recover from Lyme disease infection.
Sadly, many Americans – including a former US Senator Kay Hagan – die from tick-born illness without effective treatment. Since the Lyme disease itself began spreading shortly after the Cold War’s biowarfare programs kicked off in high gear – we can only suspect the truth as written in Kris Newby’s book Bitten: The Secret History of Lyme Disease and Biological Weapons.
Given this unsettling backdrop of government created bio-weaponry (not the first or last time), it seems only just that the US Government increases its funding of solutions for people suffering from Lyme disease – instead of living passionate, productive lives as upstanding citizens.
How Can I Help?
To get in touch to donate to our two current adopted Lyme disease patients, click here to contact us.
Thanks for supporting our chronic Lyme disease patients by working with Shark Fin to sell your old, unwanted house or apartment building. We also accept donations on behalf of the above two individuals so they can heal fully and become healthy people – and productive fellow human beings again.
What’s sad about people suffering chronic illness is that not only are they sick,
- they can’t work, and thus self-fund their own recoveries;
- with job loss comes health insurance loss
- with the diseases above, your mental capacity diminishes, further making recovery challenging
Best wishes to all Lyme disease sufferers out there – and congratulations to everyone who has beat the disease already!
Mountain View, CA
March 19, 2021